Big Cliff Posted May 5, 2015 Report Posted May 5, 2015 My son ended up back in the hospital again for a week because the Dr.s had tried to reduce one of his medications, it was something he could only stay on for a short period of time. He was told that he needed a medication that was going to cost $60,000.00 a year and it wasn't covered by OHIP, as any of you dads know "it takes whatever it takes for your family" so we were exploring options at a rapid pace because time was limited and we were running out of options. I just got a phone call from my son; because his case is so severe his Dr. went to bat for him and he has been approved for an experimental treatment which to date has been 100% successful in treating the condition. Apparently the Trillum Foundation is going to pick up the cost. It isn't a cure but if all goes well he should be able to live a reasonably comfortable and normal life! They aren't tears of joy, my eyes just leak!
kitch Posted May 5, 2015 Report Posted May 5, 2015 What a relief for all concerned! With spring here Cliff it could be allergies affecting the eyes too!
ketchenany Posted May 5, 2015 Report Posted May 5, 2015 great news Cliff, hope all goes well for him and your family.
davey buoy Posted May 5, 2015 Report Posted May 5, 2015 Good to hear Cliff,as well hope everything works out well. Your doctor and ours should be fighting for us,given the high costs, and experimental drugs that take far to long for us to use. I couldn't afford to pay the original price ,I would try ,but probably not good results.
Christopheraaron Posted May 5, 2015 Report Posted May 5, 2015 That's great news Cliff! Hope it works well for him!
misfish Posted May 5, 2015 Report Posted May 5, 2015 Great new Cliff. If he,s anything like his father,he,ll be fine.
joeybacala Posted May 5, 2015 Report Posted May 5, 2015 With all the bad news you hear every day and how much our lives are filled with so much negativity, this is fantastic news. I hope this all works out for your family.
solopaddler Posted May 5, 2015 Report Posted May 5, 2015 That truly is great news! A father's love knows no bounds and hope springs eternal.
aplumma Posted May 5, 2015 Report Posted May 5, 2015 Glad to hear this Cliff you deserved a break. Art
Steve Posted May 5, 2015 Report Posted May 5, 2015 Karma. examples like this one helps prove it exists. Glad to hear the positive news Cliff.
esoxansteel Posted May 5, 2015 Report Posted May 5, 2015 Nice to see when one of the truly good guys catches a break and gets some good news, hopefully this is a start for some good kharma as well to come to other members who could use some positive news in their lives
Pikeslayer Posted May 5, 2015 Report Posted May 5, 2015 Good things happen to good people my friend Thumbs up to CJ.
irishfield Posted May 6, 2015 Report Posted May 6, 2015 You know Cliff, many times in life someone will say "I know how you feel".... but I can say it quite frankly with Jen currently on a $5000/ month pill. So I know EXACTLY how you feel Cliff, as some weight get's lifted off your overly responsible shoulders simply by someone saying "it's covered" ! Chin up... and take another step forward. We're not done yet my friend !
Moosebunk Posted May 6, 2015 Report Posted May 6, 2015 $60,000 and the jaw dropped Cliff. But thankfully picked it up after reading on. Good news for ya!
Beans Posted May 6, 2015 Report Posted May 6, 2015 Glad to hear this Cliff...just shows to go you that sometimes the answer to our prayers is YES !!!
Old Ironmaker Posted May 6, 2015 Report Posted May 6, 2015 What wonderful news Cliff. My Mom and our family has been let down this week by our health system. I am seething over it all day. I'm going to start a thread and ask for everyones advice here.
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