mercman Posted January 9, 2011 Report Share Posted January 9, 2011 Wayne and Kelvin. You are both the strength behind your loved ones fight. Be the strong, supporting and loving men that you were destined to be, and both their battles will be won. i think often of you both. Link to comment Share on other sites More sharing options...
irishfield Posted January 9, 2011 Author Report Share Posted January 9, 2011 (edited) Kelvin.. see if your wife can get a script for Stemetil (anti-nausea pill), for when she goes home. It's been MIA at the pharmacies for almost 4 months... but it just came in (at least at Mt Sinai) on Tuesday. Edited January 9, 2011 by irishfield Link to comment Share on other sites More sharing options...
irishfield Posted January 9, 2011 Author Report Share Posted January 9, 2011 ROCK FOR CURE IS COMING SOON FOLKS. Yes it is Brian.. Crohn's and Colitis fund raiser in Barrie. Same place as last year, Friday Feb 18th @ 8pm. They need all the help they can get raising funds. They've tried to get on the LCBO / BEER store rotation for the... "would you like to donate $2".. but have been denied... unlike Cancer, Sick Kids , etc. All great causes that need research money, but Crohn's is always left with the short straw. Link to comment Share on other sites More sharing options...
irishfield Posted January 30, 2011 Author Report Share Posted January 30, 2011 (edited) Day 4 of 6 down.. of her 4th chemo treatment (6 more to go). MRI from Friday shows that her tumour is about 5/8th's the size it was in October... so the chemo is definitely working. She walks with barely a limp. Surgery... we thought was possibly after the 4th chemo and Jen was psych'd up for it..... but the surgeon is off heli skiing in BC and Oncologist thinks with what MAY happen that Jennifer will end up immobilized for 8 to 12 weeks and he can't do chemo if she's immobilized, but can't consult with the AWOL surgeon to be sure what the plan is. Oncol leaves on Holidays Monday for a week.. so nothing looks like it will happen before next chemo scheduled for the 16th of Feb. We continue a day at a time... Edited January 30, 2011 by irishfield Link to comment Share on other sites More sharing options...
mercman Posted January 30, 2011 Report Share Posted January 30, 2011 Shes a tough one Wayne. Keep the faith my friend Link to comment Share on other sites More sharing options...
Grimace Posted January 30, 2011 Report Share Posted January 30, 2011 Hoping all the best for your family Wayne. Link to comment Share on other sites More sharing options...
Jonny Posted January 30, 2011 Report Share Posted January 30, 2011 My wife and I are no strangers to this kind of pain and worry. We wish your family and your daughter all the best, Wayne. And the next time we see someone fundraising for Crohn's, you know what we'll do. Link to comment Share on other sites More sharing options...
Drew_10 Posted January 30, 2011 Report Share Posted January 30, 2011 Best of luck to your daughter, I'm sure she's in good hands. Link to comment Share on other sites More sharing options...
deepwaterbyshore Posted January 30, 2011 Report Share Posted January 30, 2011 my thoughts and prayers are with you wayne.one thing that help me when i was hurting was i asked for the lord jesus christ to come into my life and forgive me.he is the only one that will give you the peace you are looking for. Link to comment Share on other sites More sharing options...
irishfield Posted February 17, 2011 Author Report Share Posted February 17, 2011 (edited) Well a day that was both disappointing and humbling, filled with lots of (Sorry to the few I haven't called back today, I'm not in the mood) Disappointment... with today being the second time in 3 weeks we were promised that the surgeon would fill Jennifer (and us) in on what the surgery plan was and when... only to have the surgeon come into her room quickly... have his phone ring and then blow us off telling her that she couldn't expect him to explain it to her in a minute, so to call his receptionist and have her book a time slot for him during the next time Jen is in for Chemo on March 7th... so put off for another 3 weeks to worry about it. Humbling part 1.. watching her usual roomy.. a women that is 4 months younger than myself with sarcoma in her leg. She had surgery first and then was supposed to have 5 chemo sessions. She's had 3.. and the 3rd almost killed her dropping all her blood counts including platlets to zilch. She was told her body can't handle anymore chemo and to go home... with the hope that 3 sessions was enough to put it in remission. Humbling part 2.. watching the 21 year old girl straight across from Jen get the news that the chemo isn't killing the sarcoma in her arm and they will have to amputate her left arm/shoulder and partial rib cage. She also found a lump in her sternum area yesterday and if this weeks biopsy finds that to be cancer has spread to her lungs, then there will be no surgery.. she' ll be sent home to get her things in order. Edited February 17, 2011 by irishfield Link to comment Share on other sites More sharing options...
Kingsalmon Posted February 17, 2011 Report Share Posted February 17, 2011 Well a day that was both disappointing and humbling, filled with lots of (Sorry to the few I haven't called back today, I'm not in the mood) Disappointment... with today being the second time in 3 weeks we were promised that the surgeon would fill Jennifer (and us) in on what the surgery plan was and when... only to have the surgeon come into her room quickly... have his phone ring and then blow us off telling her that she couldn't expect him to explain it to her in a minute, so to call his receptionist and have her book a time slot for him during the next time Jen is in for Chemo on March 7th... so put off for another 3 weeks to worry about it. I know the waiting sucks. Here's hoping that everything works out in the end for your daughter. Mike G. Link to comment Share on other sites More sharing options...
mercman Posted February 17, 2011 Report Share Posted February 17, 2011 The waiting game is a cruel frustrating thing to live through Wayne.Doctors seem to forget about that. We,your friends, are with you now and through all that the future holds. Be strong in the eyes of your familly Wayne, but take time to address your emotions as well.You ARE NOT alone. Link to comment Share on other sites More sharing options...
Guest ThisPlaceSucks Posted February 17, 2011 Report Share Posted February 17, 2011 (edited) Wayne, I've tried to think of what to say in the past months regarding what you've been going through. I try to give my support through status updates and forum posts but I don't always know what to say. I've racked my brain trying to think of just the right thing to say that will make me feel less sad and you feel as strong as you seem to the rest of us... Yesterday I realized that all I can say is that we all hope everything works out and that in the same situation I hope I could be half the man you are. Lucas Edited February 17, 2011 by Dr. Salvelinus Link to comment Share on other sites More sharing options...
Grimace Posted February 17, 2011 Report Share Posted February 17, 2011 I made a similar comment a few pages back as I never know what to say either. Just a quick reminder to Wayne that there are a bunch of us quietly rooting for you guys. Link to comment Share on other sites More sharing options...
irishfield Posted February 17, 2011 Author Report Share Posted February 17, 2011 Thanks guys... it's great to have somewhere to blow off a little steam... what better place than here during Winternet! Link to comment Share on other sites More sharing options...
HTHM Posted February 17, 2011 Report Share Posted February 17, 2011 Thanks guys... it's great to have somewhere to blow off a little steam... what better place than here during Winternet! Hey, we are all listening....and wishing you and your family the best. Link to comment Share on other sites More sharing options...
splashhopper Posted February 17, 2011 Report Share Posted February 17, 2011 Wayne: There are no words that can be enough to share in a time like this for you and your family. So I will share a poem from my client's son: UNDERSTANDING PEOPLE A SET OF STANDARDS BY WHICH TO JUDGE TO THEIR FRIENDS, THEY GIVE A NUDGE WHEN THEY SEE ME COME THEIR WAY, THEY STOP AND WALK THE OTHER WAY OR EVEN WORSE, THEY STOP AND STARE AS IF I'M STUPID AND UNAWARE. IF ONLY THEY COULD KNOW, THAT I CARE; HOW PEOPLE VIEW ME--IT'S JUST NOT FAIR! I FEEL THE VERY SAME AS OTHERS DO, THEY SHOULD TRY AND WALK IN MY SHOE. LIFE'S NOT EASY, WHEN THE BODY THAT YOU OWN WAS GIVEN TO YOU BROKEN-DOWN. THEY MAY BE MEAN; THEY MAY BE CRUEL; THEY MAY BE BAD; BUT MOST OF ALL...THEY JUST DON'T UNDERSTAND. WITH SOME TIME AND SPECIAL GUIDANCE; WE CAN HAVE A GREAT ALLIANCE. FOR AN HOUR, OR FOR A DAY; WE ALL NEED FRIENDS ALONG THE WAY. SO WHEN YOU SEE ME COME ALONG TRY NOT TO FOCUS ON WHAT IS WRONG; I AM A PERSON JUST LIKE YOU, WHO NEEDS AND DESERVES A GOOD FRIEND TOO. JUST WALK BESIDE ME STRAIGHT AND TALL AND BE THE FRIEND THAT I CAN CALL WHEN I AM LONELY AND AFRAID. JUST REMEMBER WHAT I'VE SAID: ALL YOU NEED IS TO UNDERSTAND; DO NOT JUDGE JUST TAKE MY HAND. Bill Hiltz 1998 A picture of my client: Wayne,,, we may not understand... but our hands are here for you to take when ever u wish to take them. Sincerely, Splashhopper Link to comment Share on other sites More sharing options...
bassnass Posted February 17, 2011 Report Share Posted February 17, 2011 Hey Brother - I'd take the fact that you can't seem to garner much attention from the Docs as a good sign. I hate waiting at the best of times, so I can try and imagine how your feeling. Keep on keepin' on, man. There's no question that you're a great source of strength of your girl, and the rest of your family. Strength and love. Hang tough - we're all sending' good vibes! Link to comment Share on other sites More sharing options...
LeXXington Posted February 17, 2011 Report Share Posted February 17, 2011 We are all rooting for your Daughter. I don't post much on the topic as I don't know what to say but your family is in my thoughts. take care, Paul Link to comment Share on other sites More sharing options...
irishfield Posted March 10, 2011 Author Report Share Posted March 10, 2011 (edited) Felt compelled to update those that truely seem to care here on OFC. We're 3 days into Chemo #6.. 3 days to go. Then 4 more chemo's ending late into May. Surgeon has been in and spent an hour or more with us late Monday night. Willing to work around the first wedding Jennifer "needs" to be at in June and then he must get on with surgery about 3 weeks into June and hopes she's healed enough to be maid of honour for a wedding in September. Because her bone tumour is covering most, if not all of her right pelvic bone and also crossing the "line" into her sacrium (sp) bone.. they must remove all of the r pelvic and as much of the sacrium as they can without hitting the nerves beside the spine. This leaves nothing to bolt anything to.. so there will be no replacement of any kind. It is expected that the scar tissue and the existing muscles will hold the leg on and that hopefully in time she will be able to put her body weight on the right leg. Looking like 4 to 8 weeks in hospital after surgery.. lots of rehab.. maybe walking with weight on leg in 6 months or so. In the mean time a walker.. then polio style crutches.. then crutches. then hopefully cane and then god please walking with a lift in her shoe. A real hard kick for someone with a gymnastics background and 3 times per week volleyball playing up until this started. But she can't play if she's dead either. Something that she's definitely not ignorant to the fact of. Happy that it sounds like there'll be no radiation and she has a great chance of still being able to have kids. Going to be interesting without half a pelvic bone, but it sounds like it can be done with supports. We now know that she's definitely in the best hospital for cancer surgery in Canada. We know that as her next door neighbour Monday/Tuesday and until this morning was "Mr Smith".. aka Jack La yt on and he could go anywhere he wanted. Was hoping to talk heath care with Jack this morning, but he was discharged early this am. As much as I can't stand the guy I wish Jack the best, he left on crutches this morning which suggest his prostate cancer has spread to elsewhere requiring more surgery that he had either last week or over the weekend. He was already there when we arrived Monday am. Just when you think you have your emotions in check and your head wrapped around all this this afternoon they posted another death notice, on the sarcoma unit cork board, for a young girl from Belleville. Succumed to her osteosarcoma on Feb 10th. just 6 week shy of her 16th birthday.. it's just not right. Thanks for your shoulders folks! Edited January 18, 2012 by irishfield Link to comment Share on other sites More sharing options...
Handlebarz Posted March 10, 2011 Report Share Posted March 10, 2011 Dang Wayne I know I have not been posting alot on this but my heart has always been here. I hope all goes well or as good as can be we are thinking about Jennifer. Link to comment Share on other sites More sharing options...
Gregoire Posted March 10, 2011 Report Share Posted March 10, 2011 Having lost a good friend to cancer I wish your daughter and your family all the best. It seems like she has the right attitude to beat it. Keep her positive and pray for the best. Link to comment Share on other sites More sharing options...
HTHM Posted March 10, 2011 Report Share Posted March 10, 2011 Your whole family is mentioned in our prayers as well. Link to comment Share on other sites More sharing options...
mercman Posted March 10, 2011 Report Share Posted March 10, 2011 Hey Bud.I will be praying overtime for her from now on. in the mean time here is a song by Craig Morgan that i heard a few months ago and it made me think of Jen. Different circumstances but the song is about her none the less. Paul Link to comment Share on other sites More sharing options...
ketchenany Posted March 10, 2011 Report Share Posted March 10, 2011 I'm there with you everyday Wayne just got home from the hospital myself. My line has been drawn, it's just a matter of time when it's reached. Best of luck to Jennifer. Link to comment Share on other sites More sharing options...
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