bigfish1965 Posted November 11, 2010 Report Share Posted November 11, 2010 You have been there for me and for so many others, Wayne, I think karma owes you for sure. I wish a full and speedy recovery for your daughter and your family will be in my thoughts!! Link to comment Share on other sites More sharing options...
hammercarp Posted November 11, 2010 Report Share Posted November 11, 2010 My thoughts are with you and I hope for your daughters recovery. Link to comment Share on other sites More sharing options...
moemoe Posted November 11, 2010 Report Share Posted November 11, 2010 Hi wayne, my mother passed away from breast cancer and my 23 year old sister in law is battling lymphoma now and still fighting after 3 rounds of chemo, 2 rounds of radiation and a transplant, faith gets our family through this and you'll be in our prayers Link to comment Share on other sites More sharing options...
perodimi Posted November 12, 2010 Report Share Posted November 12, 2010 (edited) Wayne, Although we've never met, my home is open to you and yours if you need it. I'm sure that driving back and forth up the 400 is no picnic. We live in Richmond Hill just off of Yonge Street with excellent transit access and a large driveway for your car(s)(or airplane LOL!). Feel free to PM me if I can help. I'm real close to YKZ if that works too. Good Karma is two way street, hang tough... Cheers, Peter Edited November 12, 2010 by perodimi Link to comment Share on other sites More sharing options...
irishfield Posted November 12, 2010 Author Report Share Posted November 12, 2010 Thanks Peter for the generous offer. At this point we are covered staying in Jen's apartment just off Lansdowne with easy access to subway or a drive down college st to the hospital. If that changes I won't hesitate to call you, or a few of the other generous people here on OFC that have offered up accoms for us in the city. Wayne Link to comment Share on other sites More sharing options...
irishfield Posted November 16, 2010 Author Report Share Posted November 16, 2010 (edited) Today... Jen into Mount Sinai for 8am.. into a room by 9 only to be told that due to a mix up between Princess Margaret and Mount Sinai.. one having a file with Oshea on it and the other having one spelled properly.. creating a communication break down and she didn't have a necessary bench mark PET scan to start Chemo. A huge disappointment for her, after having a very restless night worrying about how this was all going to go down. Also told her portacath installation into her chest was too new to use today and that made her glad they weren't starting Chemo... if they had to try and find a vein. We would have probably gone ballistic.. but she'll be seeing these same nurses and doctors for at minimum 7 months and no point getting on the wrong side of them. GREAT news of the day to make up for the inconvienence of her booking the week off and us coming down to the city, they told her today that her bone marrow biopsy came back clear. At this point in time the Ewing's hasn't spread to her marrow. Now lets get his chemo going so it doesn't get a chance. Scan is hopefully going to be Friday and Chemo starts hell or high water NEXT Wednesday. Edited November 16, 2010 by irishfield Link to comment Share on other sites More sharing options...
jayess Posted November 16, 2010 Report Share Posted November 16, 2010 mr irishfield, i wish your daughter the best. the C-word is a terrible thing, but my uncle overcame it and i have hope for your daughter. she sounds like a true fighter. best wishes Link to comment Share on other sites More sharing options...
mercman Posted November 16, 2010 Report Share Posted November 16, 2010 she IS going to beat this Wayne.You just wait and see. Link to comment Share on other sites More sharing options...
irishfield Posted November 16, 2010 Author Report Share Posted November 16, 2010 She will for sure guys... just doesn't instill confidence when they screw up her first chemo treatment! Link to comment Share on other sites More sharing options...
Twocoda Posted November 16, 2010 Report Share Posted November 16, 2010 wayne - once your daughter kicks the crap out of this latest adversity thats somehow found it way into your lives...the techies or docs that screwed up her first chemo better make sure she wasnt taking their names...from the sounds of her determination/will and fighting spirit ...this could be detrimental to their health.. father in law- 77 years old/ one year ago diagnosed with prostate cancer...full recovery and back to being a miserable ole man ...i wouldnt have it any other way...(well maybe some manners could have been secretly installed in him) good friend 44 years old - diagnosed with colon cancer roughly a little over a year ago ..they gave him a 5% chance at survival past 6 months....we just celebrated his 1 year anniversary (Nov 3) and now they give him a 95% chance at FULL recovery... the thing he tells me that helped him through his rough times of chemo was the uncanny will to pay me the 5 bucks he owed me for betting against team canada in the last olympics hockey metal round...(im glad they didnt instill any more smarts in him) Stay positive...it IS the key to success! and i will bark at the moon on your families behalf Link to comment Share on other sites More sharing options...
irishfield Posted November 16, 2010 Author Report Share Posted November 16, 2010 Thanks.. we're sitting here yaking.. Jen, Leah and I and just realized this is actually a good thing in some ways. If they stick to her three week schedule.. originally she was going to be in the hospital on the 27th of December. With a week delay now.. she'll be clear for Christmas/New years before going in for her 3rd treatment. Link to comment Share on other sites More sharing options...
solopaddler Posted November 16, 2010 Report Share Posted November 16, 2010 Thanks for the update Wayne, great news about the bone marrow biopsy. Link to comment Share on other sites More sharing options...
irishfield Posted November 16, 2010 Author Report Share Posted November 16, 2010 (edited) Thanks Mike! ..and for those that think our health cares system is FREE... think again. Jennifer has to have a needle during (or after - not sure) each chemo treatment. Each needle is $2800 and it's not covered by OHIP !! .. so that's 10 x $2,800 = $28,000 !!! THANK GOD she is on full benefits working at Ryerson U or she'd be in serious debt (well not really.. I'd have a big dent in my wallet). She still has to pay for these up front though and submit her claim for reimbursement. Hope her credit card has at least a $6000 limit. Edited September 14, 2011 by irishfield Link to comment Share on other sites More sharing options...
misfish Posted November 16, 2010 Report Share Posted November 16, 2010 Thanks Mike! ..and for those that think our health cares system is FREE... think again. Jennifer has to take a pill during (or after - not sure) each chemo treatment. Each pill is $2800 and it's not covered by OHIP !! .. so that's 10 x $2,800 = $28,000 !!! THANK GOD she is on full benefits working at Ryerson U or she'd be in serious debt (well not really.. I'd have a big dent in my wallet). She still has to pay for these up front though and submit her claim for reimbursement. Hope her credit card has at least a $6000 limit. Thats just total CRAP wayne. Ones that need it have to pay up front. This kind of crap pisses me of the most. Like going into a walk-in clinic,no wallet,sorry we need your card. Thanks for nutt,n. Jens got this one beat bud. Link to comment Share on other sites More sharing options...
irishfield Posted November 23, 2010 Author Report Share Posted November 23, 2010 Turns out it's a needle.. and I paid for that first $2800 today, that amongst other things made reality sink in really fast. A LONG day for all involved, hitting the hosptial at 8am, with Jennifer having 4 different chemo's pushed in approximately a 1 hour period early this afternoon thru her portacath port. Can't imagine the feeling on the other side of that chemo.. but she was a trooper. Bravest 90 lbs I've ever seen... Link to comment Share on other sites More sharing options...
bigugli Posted November 23, 2010 Report Share Posted November 23, 2010 Chemo is a nasty but often necessary evil. I know many who are very grateful survivors, thanks to the treatments. Your daughter sounds like a right stubborn cuss, and that's good. It helps stack the deck in her favor. There is still the promise of hope, and I truly wish the best for your daughter and your family. I know only too well how it feels to be a spectator while your child struggles and suffers. Try to look after yourself once in a while. It takes its toll on you. Link to comment Share on other sites More sharing options...
tb4me Posted November 23, 2010 Report Share Posted November 23, 2010 WOW irish. $2800, so what if she or you couldnt afford it? Surely they wouldnt just send the patient home without? NO? Link to comment Share on other sites More sharing options...
irishfield Posted November 23, 2010 Author Report Share Posted November 23, 2010 (edited) It was actually $2697.97 for one needle with 6mg of this stuff in it !! There is also a $1000 version that is similar but not as good.. and it requires 10 needles to administer vs the single one Jen got. This drug helps fight infection that may be caused by chemo reactions and cell breakdown. I guess if you can't afford it or don't have insurance coverage then OHIP thinks multiple visits to Emerg are more cost effective! She had a rough rough night.. but worked her way thru it mentally without being sick. Better today.. and we've got her back to her apartment as of 5pm, but I think the Mack truck ran her down somewhere along College St as she's out like a light. Edited November 24, 2010 by irishfield Link to comment Share on other sites More sharing options...
Headhunter Posted November 24, 2010 Report Share Posted November 24, 2010 The small ones are usually the toughest Wayne... you guys are in my thoughts daily... and as you know, the offer always stands... Thanks for keeping us up to date... keep me in mind if you need to get away for a bit, I'm only 10 minutes away... HH Link to comment Share on other sites More sharing options...
Harrison Posted November 24, 2010 Report Share Posted November 24, 2010 (edited) Thanks for keeping us up to date... keep me in mind if you need to get away for a bit, I'm only 10 minutes away... HH Me too, could do lunch or something. Edited November 24, 2010 by Harrison Link to comment Share on other sites More sharing options...
misfish Posted November 24, 2010 Report Share Posted November 24, 2010 Thanks for the update on Jen, Wayne. She,s one tough cookie. Link to comment Share on other sites More sharing options...
irishfield Posted November 24, 2010 Author Report Share Posted November 24, 2010 (edited) Thanks Guys.. Joe/Phil.. next chemo is Dec 13th and it goes for the whole week, provided she passes her blood test at 8am and her counts are okay. So we'll be looking for an outing or three I'm sure that week. Not sure what's happening tomorrow other than I am going home for sure. I have to get a customers wings back on and airplane finished for Saturday. Leah's either staying behind or Jen is coming home with us. "Chemo brain" is a terrible thing..and she can't be left alone. Edited November 25, 2010 by irishfield Link to comment Share on other sites More sharing options...
mercman Posted November 24, 2010 Report Share Posted November 24, 2010 Hey Wayne.Not sure if you have heard of Craig Morgan.He is a country singer.He has a song out that reminds me of your daughters fight.Its called Tough.Here are the lyrics.I hope i dont offend. Lyrics to Tough : She’s in the kitchen at the crack of dawn Bacon’s on, coffee’s strong Kids running wild, taking off their clothes If she’s a nervous wreck, well it never shows Takes one to football and one to dance Hits the Y for aerobics class Drops by the bank, stops at the store Has on a smile when I walk through the door The last to go to bed, she’ll be the first one up And I thought I was tough Chorus She’s strong, pushes on, can’t slow her down She can take anything life dishes out There was a time Back before she was mine When I thought I was tough We sat there five years ago The doctors let us know, the test showed She’d have to fight to live, I broke down and cried She held me and said it’s gonna be alright She wore that wig to church Pink ribbon pinned there on her shirt No room for fear, full of faith Hands held high singing Amazing Grace Never once complained, refusing to give up And I thought I was tough Chorus She’s strong, pushes on, can’t slow her down She can take anything life dishes out There was a time Back before she was mine When I thought I was tough She’s a gentle word, the sweetest kiss A velvet touch against my skin I’ve seen her cry, I’ve seen her break But in my eyes, she’ll always be strong There was a time Back before she was mine When I thought I was tough [ Tough Lyrics on http://www.lyricsmania.com/ ] Link to comment Share on other sites More sharing options...
AzuluSpookd Posted November 25, 2010 Report Share Posted November 25, 2010 Hope everything works out Wayne....my wife's mom was placed in the hospital 2.5 weeks ago....tests came back that she has Sarcoma cancer, very rare...tissue of her uterus, disguises itself as a fibroid....however, her entire insides are full of cancer...has to have a complete hysterectomy....went for a biopsy today in newmarket as well, because she now has spots on her lungs...and right after that was completed, she was told she's going to Princess Margarets tommorow morning...SHE'S ONLY 56 and never smoked a cigarette in her life.....gonna be a tough xmas as this type usually doesn't end good.....M Link to comment Share on other sites More sharing options...
bassnass Posted November 26, 2010 Report Share Posted November 26, 2010 My heart grew heavy as I read this - and then i read "localized and curable". And it got lighter. Y'all got a crappy, deal, but I believe it's gonna get better and stay good! By the sounds of it, your daughter is a very special person, and incredibly strong. It's her admirable qualities that will lead to her beat this thing. And live a long, healthy life afterward. ~~~~~~~~~~~~~~~~Sending nothin' but good vibes ~~~~~~~~~~~~~~ DO THE DAMN THING! You rock girl! Link to comment Share on other sites More sharing options...
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