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Posted (edited)

Well folks... you can't make this crap up !! Waited all day for what was supposed to be "noonish" surgery again and at about 6pm, with us totally fed up, Jen's surgeon appeared on the floor just as fed up as ourselves. A gun shot wound this morning bumped some stuff and then something else bumped him out of the 4pm spot they promised him. Then it was maybe you can have the OR at 9pm..contact us at 7:30 to see if it's still available. Instead of going with the unknown certainty.... he offered to cancel all three of his scheduled morning surgeries to put Jen in that time frame. Gonna be three pissed off families come 7:45am tomorrow, but Jen is in that spot now, they'll have to deal with it!

Edited by irishfield
Posted

My heart sunk when I read the update Wayne. I can't imagine going through what Jen is going through. She inspired me to get through my battle with cancer :)

 

I'm sending all my positive mojo her way :)

Posted

I am starting to think that an OFC G2G at the hospital c/w ice huts and all might get some attention here. Just say the word Wayne, I for one would be there and I'll bet there would be a lot of others show up. We'd get their attention!!!!!!

Posted

4.5 hours later her surgeon came out to talk with us and show us the pictures of what she had and what he did, while the rest of his team was waking Jen up. The 5+cm "ball" came out in one piece and just looks like a white tennis ball. This tumour was under her dural layer and had pushed a large (well yah 5+ cm) cavity into her brain mass. She also had a flat "belt like" tumour in the same area on the outside of the dura and he has sent them both as seperate samples for pathology, to see if they are both Ewing's again.... or of all things hopefully some other form of sarcoma or a radiation caused tumour. We'd be even happier to hear benign, but not much chance of that.

 

Thanks for the virtual ear, she's gonna have another long road to travel from here.

Posted

Wayne, I was walking by St Mikes a half hour ago and thought of Jen's ordeal. I hope and pray it all came out and she can have a bit of good health. Bloody disease!

Posted

Wyane, thinking about you guys all day. Wife had four wisdom teeth pulled (minor compared what she has been through with Chrones) I even had a chat with a nurse while she was waking up about you guys and all you have been through.

We wish nothing for the best for your family. I know what it feels like being told that it went well and also the other way.

 

keep strong guys, I know the feeling very Wel.

 

A

Posted

Here's hoping things get much better after this episode Wayne, Jen's been through an awful lot these last few years.

Posted

She looks healthy, knows what's going on and talking just fine. Her vision has returned to clear and she can read the clock on the wall outside her room, at least 30 feet away. Something she couldn't do yesterday with her blurred vision. She currently can't feel her arms, but can move her fingers. We hope this is just a similar brain reaction like the previous tumour removal last June, where her arm was paralyzed for a few days.

 

We saw her briefly and have left her to rest for the night

Posted

She looks healthy, knows what's going on and talking just fine. Her vision has returned to clear and she can read the clock on the wall outside her room, at least 30 feet away. Something she couldn't do yesterday with her blurred vision. She currently can't feel her arms, but can move her fingers. We hope this is just a similar brain reaction like the previous tumour removal last June, where her arm was paralyzed for a few days.

 

We saw her briefly and have left her to rest for the night

Our thougts are with your family.

Posted

We showed up this morning to see Jen and she'd already been moved from ICU to a regular floor room in less than 24 hours since surgery. Shortly after that she was up and to the bathroom on her own! Doesn't even have an IV hooked to her anymore and she had left surgery with no drains in. Arm function back close to the way it was pre Thanksgiving

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