Karma... it is a three way street correct?

[ketchenany]

I don't think it's a "get paid" issue ($76 last time I checked). I think it's more a scheduling issue for everyone to be able to make calls far enough in advance of making the trip.

 

She was scheduled for 2:45 today and I had a perfect view of the Doctor across the hall viewing her MRI on the screen and talking with his associate's while giving two thumbs up. Then he walked across the hall and told Jen everything looked good and he'd see her again in 2 to 3 months.

Great news Wayne for Jen, thanks for proving me wrong.

[ckewley]

WOW.... Wayne, I don't know you & as I'm new to this forum all I can say is WOW. You, your daughter, your entire family shows amazing strength. I started reading this thread not realizing it has been 5 years/72 pages in the making but man I'm glad I did. Its taken a few days to get through & as one poster said at one point he was hesitant on opening the thread up for fear of the worse, extremely glad all's well at this point & the future looks great. I love triumph of the human spirit stories.

Thanks

Chris

[Old Ironmaker]

Fantastic news sir.

[NANUK]

Great news !

Thanks for the update

[Ralph Field]

Great news !

Thanks for the update

x2

[bassnass]

yes!!!!!!!!!!!!!

[irishfield]

Jennifer saw her Thoracic Surgeon yesterday, after having a chest Xray about an hour before.

 

He is happy with her progress, the Lung Xray looks good. Pathology confirmed that the two tumours removed from her left lung were indeed Ewing's Sarcoma and that he was able to remove them to "clear margins".

 

Back to the regular 2 or 3 month check up schedule again. Head at Sunnybrook, Body at Mt Sinai.

 

Picture of Jen before going out to a wedding on Saturday afternoon.

Edited February 4, 2015 by irishfield

[Pigeontroller]

Tough and Beautiful!

[misfish]

Tough and Beautiful!

 

 

X2

Edited February 3, 2015 by Brian B

[spincast]

I've said it before and Ill say it again. That girl is an inspiration. Great news!

[bigugli]

Glad to hear Jen has a good report from the Drs. this time around.

[Whopper]

Thanks for the positive update Wayne.

Jen looks great!

[Ralph Field]

Thanks for the positive update Wayne.

Jen looks great!

x2

[irishfield]

Post I sent to immediate family on Sunday Night:

 

Seems to be like trying to kill a vampire...

 

I left, at 6am on the 12th, for a boys 10 day ice fishing trip to our Temagami camp thinking all was going well. Jen let me leave with the guys and then told Leah at about 1pm that day that she had a new bump above her left ear. She didn't want to spoil my trip, so waited until I was at destination before saying anything! Leah let me have 8 days before sending me a text, telling me that she thought I should have a days notice at least to burn off some steam and do any maintenance the place needed before coming home ....as who knows when we can go back up North.

 

Bump is the size of a Toonie.. and sticking out a good 1/4" from normal head shape (which is bigger than her first skull tumour bump and the actual tumour then was the size of a hockey puck). Mount Sinai here we come on Tuesday afternoon for her already planned "neck down" check up (CT was last week) and they have been made aware of her new skull issue and are trying to get her a CT of her skull and brain on Tuesday as well. That way her Oncologist can hopefully find some new direction for treatment and also that hopefully it's just a single tumour. Can't see them doing a 4th craniotomy.

 

Post I sent Monday night to family:

 

Still no call back on a head CT.. so I guess we get the normally scheduled neck down check up and see what the Doctor has to say about this bump. Hopefully the scan she had on the 12th is clear at least.

 

Can’t believe she really had a clear head MRI report on Jan 21st and managed to grow this thing in under 3 weeks. Jen doesn’t trust the Radiation Oncologist at Sunnybrook anymore, can’t say I blame her.

 

Was a hectic day with our younger daughter, Kristal, stranded half way to Barrie with a frozen battery and a pooched alternator this morning, but I managed to get the truck home and fixed by 4pm. I had a battery in the shop and got lucky that the local parts store had an alternator in stock for 215 bucks. Just love these extra "tests" on my sanity!

 

We then managed to pull off a surprise 30th birthday dinner, with our other two kids and their significant others here. Jen still has it in her mind to stay in the city after the Dr tomorrow, by herself. Girls night out for her Birthday is Saturday and then her and Kristal are also supposed to go to Massey Hall next Monday for a concert, but she’s been nauseous and was just sick as I was typing this... so not sure how it’s going to play out. We’ve got to let her do what she thinks she needs to do. Wishing she had of done a trip South with Leah while I was ice fishing, instead of telling her she couldn’t afford both it and her trip to Vegas in early May for a wedding. Doubt she’ll be going to Vegas for the wedding, simply based on timing and past history of recovery.

 

Post to everyone today:

 

Well folks, I have nothing great to report, other than extreme efficiency in action the past two days.

 

Arrive to Mount Sinai yesterday at 1:30... no CT or MRI booked and we found out that the secretary she talked to a week earlier decided to quit last Friday, as she couldn't put up with the "now" attitude of Jen's new Oncologist. She should be held liable for not performing her duties, as while she told Jen she would talk to the Doc and get back to her... she didn't do either!

 

Anyhow... first Leah did her magic and tracked down Jen's regular nurse and told her of the bump. This quickly escalated to Jen skipping the line and probably a 3 hour wait to see the Doctor. He saw her quickly and then started pulling strings and calling in favours and while he couldn't get an MRI in his own hospital he got one for her IMMEDIATELY next door at Princess Margaret. We were back to his office within an hour and a half and by 4pm he was looking at the scan. Bump as suspected is another skull tumour, encroaching the brain as best he could see. Within minutes of telling us that he was on the phone to Sunnybrook hospital to her Radiation Oncologist. The Radiation Oncologist told him to have her in his office at Sunnybrook any time today, morning or afternoon, and he would see her immediately.

 

We planned to leave here at 9am this morning and had to stop at Princess Margaret to get a copy of the MRI and then across the city to Sunnybrook. Got her there about 10:45, she checked in and before even sitting down in the waiting room was called in. The R/Oncol saw her very quickly.. felt her bump and then went and looked at her MRI. Came back to tell us it's not just this bump that has grown in the last 3 to 4 weeks, there is some brain activity /compromise as well. He then called down stairs to his clinic and within 25 minutes Jen had a CT and another radiation mask formed to clamp her to the table...and a Rad schedule in her hand.

 

Jen starts full head / brain radiation TOMORROW for 10 sessions. Definitely not what she wants to be doing on her birthday on Friday but we are hoping that the steroids they've given her, and the energy she's showing today, that she'll be able to attend and enjoy her Saturday birthday bash with her friends.

[okumasheffield]

Stay positive. Those darn things will get removed one at the time until none is left!

[Tom McCutcheon]

I have never met you Wayne or any of your family, but I have to admit that as strong as your daughter is, I know where she gets it from. An apple doesn't fall far from the tree.

You, sir, and your family, have the strength and determination to combat this evil disease.

 

Tom.

[bigugli]

How the hell does a mass that size suddenly appear in only 3 weeks!! Somebody missed something last time around. I would be more than livid if that happened to Judy.

[irishfield]

Nobody missed anything Bruce. The last 2 tumours.. one the size of a tennis ball... grew in less than 7 weeks after a clear scan. The ones before that in less than 16. It's just getting more aggressive as time goes on.

 

This isn't a typical, predictable cancer. We're dealing with Ewing's Sarcoma here. Most Doctors don't understand it, or Sarcomas in general, so I wouldn't expect many to get that it behaves nothing like typical cancers. Based on the past 72 pages though, I bet many know more about it than they ever wanted to! I certainly do, unfortunately.

Edited February 26, 2015 by irishfield

[HTHM]

Well, crap! I'm sorry to hear about this setback Wayne. I wish you strength in the days ahead.

[Big Cliff]

Wayne, I don't know how you do it, my problems seem so trivial compaired to what you and your family are going through. My prayers for you all!

[Whopper]

Just another page of the test Wayne, and your still passing with flying colors.

 

Hang in there my friend

[Tomcat]

The best to you and your family.

[bigbuck]

Wayne, I do not know what to say other than *!*:/+/+:+:+:/*/+/+:-/+:-;-'='@-:-"'-!)!-? Cancer!!!! I had my last treatment 2 weeks ago. A couple days ago, an old high school friend passed away from pancreatic cancer at 45. Bittersweet for me. Hearing about Jen now is tough. I wish her the best of luck and Godspeed with her treatment to clean it up.

[spincast]

ahhhhh, crap!. that is NOT what i was looking to read - thoughts and prayers for all of you as always Wayne.

Edited February 26, 2015 by spincast

[Old Ironmaker]

Oh man. I am actually afraid to open this thread as all I want to read here is she is doing just fine, This year has been a bad on as I have lost 3 close friends since the second week of January to that dreaded C word. I am a Bladder Cancer survivor as I have been clear for 4 years last December. I'm guilt actually dealing with something called survivor guilt lately as I had 1 surgery and that was it, no Chemo, no Radiation, nothing.

 

I read your last post and started leaking. Look I'm not a religious person but do believe. Both my wife and I pray for your family and your beautiful young daughter. It seems are prayers are getting longer and longer unfortunately. I envy the strength both your family and you have Sir.

 

I know how frustrating these trips to TO must be, especially for a 5 minute consult and have to bring Jen with you considering how taxing the trip and waits can be for Jen especially. I have no idea why they have you schlep all the way to get test results, especially for a "no change" update. Hell I am only an hour from Hamilton and unless there is something serious from my Specialists I have them call me for test results from Diabetes to other stuff I have going on. They call me at home, sometimes just leave a message, good news or bad. I have no idea why they can't call you at home. No way in Hell I would make my daughter make that trip. My father is 88 and Mom is 85, I have POA for their health matters and I have their Docs call me for test results, as it takes 15 minutes to get Mom in a car and it gives her considerable pain to do so, it was killing me to watch her crawl into the seat a few inches at a time,I was told that the CCAA will go to the retirement residence to facilitate bloodwork. I told her many Dr's last year she just can't do it unless there is a procedure. I would put my foot down and have them call.

 

God bless you all up there Wayne and prayers are coming forthwith.

Edited February 27, 2015 by Old Ironmaker