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Posted

Thanks folks... guess I'd better get to bed. 4:45 is gonna come quick for us to leave for the city. Might be a day or two before I'm back on line, but will update when I can.

Posted

Thanks folks! Leah and I just got into Jen's Toronto apartment, hopefully for a full night and some much needed sleep. Jen saw her neuro at 8:10am, was admitted through emerg to jump the system... blood work, ECG. lung xray, etc and finally got a neuro floor room at 2pm. About 7pm she was taken to have a special CT that shows the blood vessels in her brain. At the current time, 11:45pm, still waiting for an MRI that is supposed to happen before morning. She's NPO as of midnight, so hopefully surgery proceeds tomorrow unless the consults with her Medical Oncol, Radiation Oncol and the Neuro decide another approach is needed before tumour removal. We've seen the CT from Sunday night, the tumour is perfectly round and looks like someone jammed a tennis ball into her head.

Posted (edited)

Got her MRI at 4am... still NPO and waiting (now 12:45pm). She may get surgery later today or tonight, but we're getting that "ground hog day" feeling, like her last time here, that she's not going to be able to eat anything all day... and then find she gets passed over.. repeat tomorrow. Time will tell. She's getting a tad testy with no sleep or food.

Edited by irishfield
Posted

Dang !...There she goes knocking the crap out of my "poor me s"...

 

I hope all goes well for Jen soon Wayne...

Posted

Ahhh CRAP!!!! Wayne, that little girl you have there is a lot tougher than us my friend. She will get through this like she did before. Just another speedbump. Take care and my thoughts and prayers are with you.

Posted

Well another day of NPO and no surgery. We snuck her out to the 3 Brewers on Yonge St. for a 9pm supper to try and top her up again before midnight. Hopefully they fit her in tomorrow, or you may hear of a disturbance at St. Mike's in the news!

Posted (edited)

Thanks Castaway, but we're fine and thankfully aren't paying for a hotel everynight while we wait... as we have Jen's apartment about 30 minutes from the hospital.

 

 

 

Jen was in Que for the last OR of the night at about 9pm last night... and then a Helicopter landed on the roof at 9:10, followed by her nurse running into her room and declaring "you can eat" "Sorry" ! $%(*@$*(@$(*

 

 

Been moved up the priority list this morning from a "C" to a "B" and has been told 99% chance she'll get in within the next 8 hours. Sure hope so as her headaches are getting worse and considering this thing grew at the rate of at least a 1/2 cm per week, in the 10 weeks since a clear MRI was done July 23rd... it has most likely grown another 0.5cm in the time she's been lying here NPO all week.

Edited by irishfield
Posted

Thanks for the update Wayne, can't imagine the stress and emotions your family is going through with these delays. Fingers and toes crossed that it will happen today. Positive thoughts and prayers don't stop coming your way.

Posted (edited)

Everything went to hell in a handbasket about 9 pm last night.... her Surgeon is livid with the OR scheduling staff. He called me last night about 11pm, while we had Jen out to the Firkin on Yonge for some food, and read me a scathing letter to the OR scheduling staff, that "Jen will be on the list after the first short procedure scheduled on Monday morning or she will suddenly become an "A" case and they'll have no choice." So hopefully that happens... as by Monday she's going to be an A case on her own, as this thing continues to grow and her mobility lessens.

Edited by irishfield
Posted

Oh Wayne, I can't believe the nonsense Jen (and you guys) have had to put up with in this wonderful medical system we have! My heart and prayers go out to you all and we wish you all the very best!

Posted

Oh Wayne, I can't believe the nonsense Jen (and you guys) have had to put up with in this wonderful medical system we have! My heart and prayers go out to you all and we wish you all the very best!

 

Times 2. All the best Wayne.

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