Irish, thanks for posting. It's not a disease most people can relate to. I know very well what your daughter has gone through. My wife was diagnosed at 22, six months after our first child. She went through the same symptoms, tests, medications etc. We were very fortunate to have found two amazing doctors. One actually had a twin brother with the illness.
They tried everything to control it. She had two more children and it came back stronger than ever. The surgeon/us finally decided it was time to operate after a long, long meeting weighing the pros and cons and success of the procedure.
She came out of it very fortunate, he removed more than he had said to try to stop it.
AND HE DID IT. That was back in '85 and free of it since.
She owes he life to those two Doctors, and over the years we have donated to the cause and hopefully a cure can be found.
Hope your daughter keeps her spirits up one day this thing will be wiped out.