Post I sent to immediate family on Sunday Night:
Seems to be like trying to kill a vampire...
I left, at 6am on the 12th, for a boys 10 day ice fishing trip to our Temagami camp thinking all was going well. Jen let me leave with the guys and then told Leah at about 1pm that day that she had a new bump above her left ear. She didn't want to spoil my trip, so waited until I was at destination before saying anything! Leah let me have 8 days before sending me a text, telling me that she thought I should have a days notice at least to burn off some steam and do any maintenance the place needed before coming home ....as who knows when we can go back up North.
Bump is the size of a Toonie.. and sticking out a good 1/4" from normal head shape (which is bigger than her first skull tumour bump and the actual tumour then was the size of a hockey puck). Mount Sinai here we come on Tuesday afternoon for her already planned "neck down" check up (CT was last week) and they have been made aware of her new skull issue and are trying to get her a CT of her skull and brain on Tuesday as well. That way her Oncologist can hopefully find some new direction for treatment and also that hopefully it's just a single tumour. Can't see them doing a 4th craniotomy.
Post I sent Monday night to family:
Still no call back on a head CT.. so I guess we get the normally scheduled neck down check up and see what the Doctor has to say about this bump. Hopefully the scan she had on the 12th is clear at least.
Can’t believe she really had a clear head MRI report on Jan 21st and managed to grow this thing in under 3 weeks. Jen doesn’t trust the Radiation Oncologist at Sunnybrook anymore, can’t say I blame her.
Was a hectic day with our younger daughter, Kristal, stranded half way to Barrie with a frozen battery and a pooched alternator this morning, but I managed to get the truck home and fixed by 4pm. I had a battery in the shop and got lucky that the local parts store had an alternator in stock for 215 bucks. Just love these extra "tests" on my sanity!
We then managed to pull off a surprise 30th birthday dinner, with our other two kids and their significant others here. Jen still has it in her mind to stay in the city after the Dr tomorrow, by herself. Girls night out for her Birthday is Saturday and then her and Kristal are also supposed to go to Massey Hall next Monday for a concert, but she’s been nauseous and was just sick as I was typing this... so not sure how it’s going to play out. We’ve got to let her do what she thinks she needs to do. Wishing she had of done a trip South with Leah while I was ice fishing, instead of telling her she couldn’t afford both it and her trip to Vegas in early May for a wedding. Doubt she’ll be going to Vegas for the wedding, simply based on timing and past history of recovery.
Post to everyone today:
Well folks, I have nothing great to report, other than extreme efficiency in action the past two days.
Arrive to Mount Sinai yesterday at 1:30... no CT or MRI booked and we found out that the secretary she talked to a week earlier decided to quit last Friday, as she couldn't put up with the "now" attitude of Jen's new Oncologist. She should be held liable for not performing her duties, as while she told Jen she would talk to the Doc and get back to her... she didn't do either!
Anyhow... first Leah did her magic and tracked down Jen's regular nurse and told her of the bump. This quickly escalated to Jen skipping the line and probably a 3 hour wait to see the Doctor. He saw her quickly and then started pulling strings and calling in favours and while he couldn't get an MRI in his own hospital he got one for her IMMEDIATELY next door at Princess Margaret. We were back to his office within an hour and a half and by 4pm he was looking at the scan. Bump as suspected is another skull tumour, encroaching the brain as best he could see. Within minutes of telling us that he was on the phone to Sunnybrook hospital to her Radiation Oncologist. The Radiation Oncologist told him to have her in his office at Sunnybrook any time today, morning or afternoon, and he would see her immediately.
We planned to leave here at 9am this morning and had to stop at Princess Margaret to get a copy of the MRI and then across the city to Sunnybrook. Got her there about 10:45, she checked in and before even sitting down in the waiting room was called in. The R/Oncol saw her very quickly.. felt her bump and then went and looked at her MRI. Came back to tell us it's not just this bump that has grown in the last 3 to 4 weeks, there is some brain activity /compromise as well. He then called down stairs to his clinic and within 25 minutes Jen had a CT and another radiation mask formed to clamp her to the table...and a Rad schedule in her hand.
Jen starts full head / brain radiation TOMORROW for 10 sessions. Definitely not what she wants to be doing on her birthday on Friday but we are hoping that the steroids they've given her, and the energy she's showing today, that she'll be able to attend and enjoy her Saturday birthday bash with her friends.