Well as many know.. chemo #10 is in the books as of Saturday and was hopefully the last ever. This Monday Jen had an MRI at 6:30 am.. waited to see the surgeon at 9:30 (ended up being 10:30) with, disappointingly, no date given for surgery. Then a pre-op appointment at 11 to see if she's fit for surgery, which in her current condition with 78/55 blood pressure is not. Hopefully a couple weeks of fluids and good meals will have her up closer to 95/60 or so and surgery is ball parked between last week of June and first week of July at this point. The great news is the massive soft tissue tumor has been shrunk pretty much right back to the bone from where it came. The bad news is the entire right pelvic bone and a good portion of her sacrum still have to come out, as chemo doesn't kill bone tumors. Nothing gets replaced, expected of scar tissue and existing muscles to hold her leg on and make it work. Gonna be a LONG haul after surgery.
Gonna share a few pictures here to show just how much spunk some of these "kids" have in the Sarcoma unit. We see many that never get out of bed, never smile and recovery/prognosis seems to go hand in hand with that unfortunately. Now these two should live for ever. Ewing's sarcoma is one of the rarest forms of cancer. Only 40 cases a year diagnosed, so what's the chances of these two having not only Ewing's in common.. but the same right pelvic bone??! Jen knew it was "B's" birthday on Monday (poor bugger turning 18 while sitting in the sarcoma unit ), so Sunday night we had to hit the dollar store for some presents. Jen got him a big bag of toys for $10 + tax and they proceeded to ring them all out on Monday, shortly after they had their chemo drips hooked up.
Friday we thought we should get Jen a graduation present... like they say, it's the thought that counts! lol
Our younger daughter Kristal finally got to throw "spa night" for Jen on Friday night. I'm sure it broke a million hospital rules, but ask us if we care!