irishfield Posted December 15, 2012 Author Report Share Posted December 15, 2012 Simply Incredible Wayne. A true inspiration for all of us! Thanks Roger and everyone else that keeps checking in here. Jen went back to her apartment on Wednesday afternoon... to get an entire 4 days and 3 nights (out of the last 3 weeks)without her parents staring at her.. and hopefully some friend visit time. We're back to the city Sunday night.. for full week #5 of chemo for this skull tumour.. and then home again on Friday night the 21st. Deja vu all over again.. better not be sitting in GBH on Christmas eve this time around.. As asked previously... please share Jen's Montage video where ever you can, heck.. go click it from time to time when you think that sniffle is something to whine about! Link to comment Share on other sites More sharing options...
Tayzak15 Posted December 15, 2012 Report Share Posted December 15, 2012 I know I'm new on here and don't really know anyone yet on here, but that video is unbelievable! After seeing that x-ray at the beginning I wouldn't even think it would be possible to walk again. That's amazing the progress she has made. I wish your daughter and your family the best! Link to comment Share on other sites More sharing options...
irishfield Posted December 15, 2012 Author Report Share Posted December 15, 2012 ! After seeing that x-ray at the beginning I wouldn't even think it would be possible to walk again. Thanks Tayzak... it's not only you, her Oncologist doesn't understand how she can walk either.. but her sure does brag that she can! Link to comment Share on other sites More sharing options...
Tayzak15 Posted December 15, 2012 Report Share Posted December 15, 2012 Thanks Tayzak... it's not only you, her Oncologist doesn't understand how she can walk either.. but her sure does brag that she can! Im curious and its fine if you dont want to answer, where her pelvic bone is missing there is there still lots of pain or pressure pain where the pelvic bone is gone? , since the femur bone doesn't seen to be attached to anything and just in flesh there? I just can't imagine being able to walk without that bone, its incredible that she is. Link to comment Share on other sites More sharing options...
irishfield Posted December 15, 2012 Author Report Share Posted December 15, 2012 (edited) Im curious and its fine if you dont want to answer, where her pelvic bone is missing there is there still lots of pain or pressure pain where the pelvic bone is gone? , since the femur bone doesn't seen to be attached to anything and just in flesh there? I just can't imagine being able to walk without that bone, its incredible that she is. As you can see if you stop the video there.. everything is gone.. pelvic, pubic and a good part of her sacrum in an attempt to get clear margins from the bone sarcoma on the right side. Nothing will ever be replaced as there's no hard bone left to bolt anything to. Yes, her femur ball is just floating in tissue and muscle. She hasn't taken a pain killer for it since day 12 after surgery... although she's gonna have issues to counter with spinal curvature over time and be a chiros best $ friend. They told her she'd be in bed in the hospital for at least 6 weeks, possibly 6 months... she was out of there on day 18! Edited December 15, 2012 by irishfield Link to comment Share on other sites More sharing options...
Tayzak15 Posted December 15, 2012 Report Share Posted December 15, 2012 As you can see if you stop the video there.. everything is gone.. pelvic, pubic and a good part of her sacrum in an attempt to get clear margins from the bone sarcoma on the right side. Nothing will ever be replaced as there's no hard bone left to bolt anything to. Yes, her femur ball is just floating in tissue and muscle. She hasn't taken a pain killer for it since day 12 after surgery... although she's gonna have issues to counter with spinal curvature over time and be a chiros best $ friend. They told her she'd be in bed in the hospital for at least 6 weeks, possibly 6 months... she was out of there on day 18! Thats incredible, good for her!, just looking at that x-ray and imagine walking i can feel the pain. For her to actually go through it and continue fighting is astonishing! Link to comment Share on other sites More sharing options...
irishfield Posted December 15, 2012 Author Report Share Posted December 15, 2012 Physio 5 to 6 times per WEEK since last October (Sun Life hates her ass.. totally covered to the tune of over 25 grand for Physio and about the same for anti infection needles during her first chemo sessions). Walking sure didn't come easy... now to take care of this Ewing's tumour on her skull. Link to comment Share on other sites More sharing options...
Tayzak15 Posted December 15, 2012 Report Share Posted December 15, 2012 Physio 5 to 6 times per WEEK since last October (Sun Life hates her ass.. totally covered to the tune of over 25 grand for Physio and about the same for anti infection needles during her first chemo sessions). Walking sure didn't come easy... now to take care of this Ewing's tumour on her skull. Yes. Best of luck! With the attitude she seems to have, nothings going to stop her! I'm confident she will make a full recovery. Stories like these make me thankful for my health. I'm only 21 years old, but it certainly humbles me reading stuff like this. It makes you realize no matter what your age, you're not invincible to disease. Really makes me appreciate what I have a lot more. Link to comment Share on other sites More sharing options...
ehg Posted December 15, 2012 Report Share Posted December 15, 2012 Following this thread really helps me fight against physical disability. Jen's heart, will and mental strength is more than incredible. Link to comment Share on other sites More sharing options...
mr blizzard Posted December 15, 2012 Report Share Posted December 15, 2012 Prayers for family strength and continued healing are coming from the north as well. Link to comment Share on other sites More sharing options...
moxie Posted December 15, 2012 Report Share Posted December 15, 2012 WOW! What a fighter. Link to comment Share on other sites More sharing options...
irishfield Posted December 17, 2012 Author Report Share Posted December 17, 2012 Thanks guys.. Passed her blood work this morning and day one of chemo is in the books. Four more to go this week and we can go home for Christmas. Full week #6 is slated for Jan 7th and based on that week happening (and a new MRI picture), surgery to remove the effected skull bone about 3 weeks after.. so late Jan early Feb. Link to comment Share on other sites More sharing options...
camillj Posted December 17, 2012 Report Share Posted December 17, 2012 Good stuff Wayne... hope she gets the best Christmas present ever ! Link to comment Share on other sites More sharing options...
Rich Clemens Posted December 17, 2012 Report Share Posted December 17, 2012 Sounds great. Lets hope this is the END Link to comment Share on other sites More sharing options...
motv8tr Posted December 17, 2012 Report Share Posted December 17, 2012 I'll be thinking of you guys over the Holidays and hope you all have a fun, relaxing and stress free Christmas!!! Wishing you all the best for 2013 Maureen Link to comment Share on other sites More sharing options...
ctdd2006 Posted December 18, 2012 Report Share Posted December 18, 2012 Inspiring stuff Wayne. Kick its ass! Merry christmas. Link to comment Share on other sites More sharing options...
Remo Posted December 18, 2012 Report Share Posted December 18, 2012 I'm really gald things are progressing well Wayne, I hope you have a great Christmas. Link to comment Share on other sites More sharing options...
FishAbout Posted December 18, 2012 Report Share Posted December 18, 2012 I hope some day I will be as strong willed as her. Has she thought about making a book about her ordeal. If she does, I think many people would take a lot from it. Hoping for a great new year for her. Justin Link to comment Share on other sites More sharing options...
bigbuck Posted December 18, 2012 Report Share Posted December 18, 2012 Good to hear Wayne!! She's grinding it out and that's awesome news. Finish up the chemo, excise what's bad and she can move on with her life. I go in for Round 4 this morning at Credit Valley. Link to comment Share on other sites More sharing options...
Leecher Posted December 18, 2012 Report Share Posted December 18, 2012 Good news Wayne It's amazing and inspiring what your daughter is going through... Keep on fighting Jen, you doing great! Thoughts and prayers Jacques Link to comment Share on other sites More sharing options...
Whopper Posted December 19, 2012 Report Share Posted December 19, 2012 Merry Christmas to your entire family Wayne Link to comment Share on other sites More sharing options...
irishfield Posted December 20, 2012 Author Report Share Posted December 20, 2012 Thanks everyone! Three days in the books.. two to go. Then we can go home for Christmas on Friday afternoon! Just hope we miss the pre-christmas weekend rush hour up the 400. Link to comment Share on other sites More sharing options...
ketchenany Posted December 20, 2012 Report Share Posted December 20, 2012 Wayne, great to see you are going home fornChristmas, whatever time it takes to get there, they say the weather won't be that great, you've probably seen worse. . . And can handle it I'm sure Wishing your family a Merry Christmas and the best that the New Year can bring. A Link to comment Share on other sites More sharing options...
HTHM Posted December 20, 2012 Report Share Posted December 20, 2012 Thanks everyone! Three days in the books.. two to go. Then we can go home for Christmas on Friday afternoon! Just hope we miss the pre-christmas weekend rush hour up the 400. Hwy 27 is a great alternate route. Link to comment Share on other sites More sharing options...
Squid Posted December 20, 2012 Report Share Posted December 20, 2012 Good luck Big BUck!! Hope yours goes well also. Wayne all the best in the New Year, you guys deserve it!! Link to comment Share on other sites More sharing options...
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